People with the rare genetic disorder, Prader-Willi syndrome (PWS), often require around the clock supervision and care. However a lack of appropriate services and supports places a huge strain on them and their families, a new report has shown.
The report was published by the Prader Willi Syndrome Association of Ireland and is based on the first national survey to look at the needs of people with PWS and their families.
PWS is a complex genetic condition that usually causes restricted growth,